Our Purpose BREEak The Rules

The “System” Labels and then Cattle Chutes  families with a “zero” chance of survival at diagnosis

The only option for treatment is the Standard of Care (SOC aka Sorry; Outta Cures); which doesn’t Cure & only occasionally extends life

Clinical trials are not an option until SOC is completed or in other words; until after SOC Fails

Parents are NOT encouraged or empowered to take risks with limited and  undocumented  “reasons”  not  to

Navigating the Care Team is difficult without clear roles & responsibilities  documentation

Raise Awareness of the Illogical & Inhumane way that the “System” labels kids and don’t “fight” for their lives

BREEak the Rules of Standard of Care when SOC has NEVER proven to be effective to Keeping Super 😊’s Shinning

BREEak the Rules of the Clinical Trial Qualifications to allow KIDS that may not be the “best fit for the Trial Stats” to receive potentially life saving care

BREEak the Roots of the Clinical Trial Issues

• Negative impact of the “stats” that a kid without much “chance” will negatively impact the Trial Study “Success” data & results; therefore NOT selected

• The Research Funding Rules to Make Trails Accept Kids to Ensure that they get a Chance to Live