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LiveLikeBree
Home
Our Purpose
LiveLikeBree Memories
Daddy’s πŸ’™ for Bree
Celebrate Bree's 10th
BREEak The Rules
Empower Parents
More
  • Home
  • Our Purpose
  • LiveLikeBree Memories
  • Daddy’s πŸ’™ for Bree
  • Celebrate Bree's 10th
  • BREEak The Rules
  • Empower Parents
  • Home
  • Our Purpose
  • LiveLikeBree Memories
  • Daddy’s πŸ’™ for Bree
  • Celebrate Bree's 10th
  • BREEak The Rules
  • Empower Parents

Our Purpose Empower Parents To Direct Care

First; The Problem

Aggressive Cancer Need More Aggressive Treatments

The β€œSystem” Labels and then Cattle Chutes  families with a β€œzero” chance of survival at diagnosis


The only option for treatment is the Standard of Care (SOC aka Sorry; Outta Cures); which doesn’t Cure & only occasionally extends life


Clinical trials are not an option until SOC is completed or in other words; until after SOC Fails


Parents are NOT encouraged or empowered to take risks with limited and  undocumented  β€œreasons”  not  to


Navigating the Care Team is difficult without clear roles & responsibilities  documentation

Our Purpose

Empower Parents to Direct Care - Focus on Terminal Brain Cancers specifically H3K27M & DIPG

Empower Parents to Direct Care by Taking Charge and inform them how to Navigate the β€œSystem” and talk about the stuff that the Clinician’s & Resources don’t want you to know


Phase 1

  • Connect with Parents to Share Experiences and β€œWhat to Look For’s”
  • Creation of An Inclusive Resource Library of β€œWhat to Look for & How To’s”


Phase 2

  • Produce a Comprehensive Roles and Responsibilities β€œCare Team” Chart to Help Parents Know β€œWhere To Go” and β€œHow to Contact”
  • Expansion of Resource Library β€œWhat to Look for & How To’s”


Phase 3

  • Recruit Sponsors & Resources to Broaden Our Reach and Create Positive Impact for More Families
  • Develop Family Forums & Social Support Groups for Identified Resource Gaps     

Save Super πŸ˜€πŸ˜ƒπŸ˜„πŸ˜πŸ˜†πŸ˜Šβ€™s

Your contribution* will help enable our Purpose to Save Super  πŸ˜€β€™s  of Kids like Bree & Parents like Us.

  

Bree’s Super πŸ˜€ should be here with us & shared with the World.


We Will Make A Difference For Others To Ensure That Losing Bree Physically Happened For A Greater Cause.


*Live Like Bree is A Non Profit Organization

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Live Like Bree Is A Non Profit Organization

501(c)(3) Organization Designation is in Development and Expected to be Complete by End Of 2021.

  • Home
  • Our Purpose
  • LiveLikeBree Memories
  • Daddy’s πŸ’™ for Bree
  • Celebrate Bree's 10th
  • BREEak The Rules
  • Empower Parents