The “System” Labels and then Cattle Chutes families with a “zero” chance of survival at diagnosis
The only option for treatment is the Standard of Care (SOC aka Sorry; Outta Cures); which doesn’t Cure & only occasionally extends life
Clinical trials are not an option until SOC is completed or in other words; until after SOC Fails
Parents are NOT encouraged or empowered to take risks with limited and undocumented “reasons” not to
Navigating the Care Team is difficult without clear roles & responsibilities documentation
Empower Parents to Direct Care by Taking Charge and inform them how to Navigate the “System” and talk about the stuff that the Clinician’s & Resources don’t want you to know
Your contribution* will help enable our Purpose to Save Super 😀’s of Kids like Bree & Parents like Us.
Bree’s Super 😀 should be here with us & shared with the World.
We Will Make A Difference For Others To Ensure That Losing Bree Physically Happened For A Greater Cause.
*Live Like Bree is A Non Profit Organization